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Dealing with Fibromyalgia, arthiritis, degenerative bones, painful back and knees

Lo-Lo started this conversation

Suffering with Fibromyalgia      by the U.S. National Library of Medicine and Health

 

This what fibromyalgia is and what I suffer with on a day to day basis:

Fibromyalgia is a common condition characterized by long-term, body-wide pain and tender points in joints, muscles, tendons, and other soft tissues.  Fibromyalgia has also been linked to fatigue, morning stiffness, sleep problems, headaches, numbness in hands and feet, depression and anxiety.

Fibromyalgia can develop on its own or along with other musculosketal conditions such as rheumatoid arthritis or lupus.

Causes:

The cause of this disorder is unknown.  Physical or emotional trauma may play a role in development of the syndrome.  Some evidence suggests that fibromyalgia patients have abnormal pain transmission responses.

It has been suggested that sleep disturbances, which are common in fibromyalgia patients, may actually cause the condition.  Another theory suggests that the disorder may be associated with changes in skeletal muscle metabolism, possibly caused by decreased blood flow, which could cause chronic fatigue and weakness.

Others have suggested that an infectious microbe, such as a virus, triggers the illness.  At this point, no such virus or microbe has been identified.

Pilot studies have shown a possible inherited tendency toward the disease, though evidence is very preliminary.

Men and women of all ages get fibromyalgia, but the disorder is most common among women aged 20 to 50.

Symptoms:

The overwhelming characteristic of fibromyalgia is long-standing, body-wide pain with defined tender points.  Tender points are distinct from trigger points seen in other pain syndromes.  Unlike tender points, trigger points can occur in isolation and represent a source of radiating pain, even in the absence of direct pressure.

Fibromyalgia pain can mimic the pain that occurs with various types of arthritis.  However, the significant swelling, destruction, and deformity of joints seen in diseases such as rheumatoid arthritis does not occur with fibromyalgia syndrome alone.

The soft-tissue pain of fibromyalgia is described as deep-aching, radiating, gnawing, shooting or burning, and ranges from mild to severe.  Fibromyalgia sufferers tend to wake up with body aches and stiffness.

For some patients, pain improves during the day and increases again during the evening, though many patients with fibromyalgia have day-long, unrelenting pain.  Pain can increase with activity, cold or damp weather, anxiety, and stress.

Treatment:

In mild cases, symptoms may go away when stress is decreased or lifestyle changes are implemented.  A combination of treatments including medicaions, patient education, physical therapy, and counseling are usually recommended.  Many fibromyalgia sufferers have found support groups helpful.

In 2007, the Food and Drug Administration approved Pregabalin Lyrica as the first drugh for the treatment of fibromyalgia.  In June 2008, a second drug, Cymbalta, which was previously approved for treating depression, was FDA approved milnacipan (Savella) for the treatment of fibromyalgia.

Certain classes of antidepressant medications are sometimes prescribed for the disorder.  Studies show that antidepressants in low doses can decrease depression, relax craniofacial and skeletal muscles, improve sleep quality, and release pain-killing endorphins.  Other medications that are used include anti-inflammatory pain medications that work on pain transmission pathways, such as Gabapentin.

Eating a well-balanced diet and avoiding caffeine may help with problems sleeping, and may help reduce the severity of the symptoms.  Lifestyle measures to improve the quality of sleep can be effective for fibromyalgia.

Some reports indicate that fish oil, magnesium/malic acid combinations, or vitamins may be effective.  Reducing stress and improving coping skills may also help reduce painful symptoms.

Improved fitness through exercise is recommended.  Studies have shown that fibromyalgia symptoms can be relieved by aerobic exercise.  Starting out slowly and gently can help ease you into an effective program you can stick with.  Starting slowly helps stretch and mobilize tight, sore muscles.  High-impact aerobics and weight lifting could cause increased discomfort.  Symptoms may be relieved by gentle stretching and light massage, as well as acupressure, acupuncture, and relaxation techniques.

Severe cases of fibromyalgia may require a referral to a pain clinic.

 

My condition of this is severe.  I have been seen by a pain doctor in a pain clinic for 2 years.  i am currently on seven different type of pain medications and one of them being Lyrica, i get anywhere from 10 to 15 injections every three weeks, i have physical therapy off and on, i do water aerobics and stretch exercising, heating pads, ointments, tense unit, hand massager, support group and church.  I have had accupuncture and other types of pain medications that i am now immune to.  There is so much to do just to get some relief that is very depressing for me and keeps me from being able to do alot.  But i try to have a positive outlook and be grateful for everyday that i arise.

 

Click here to add your comment...
Lo-Lo
 in response to ingrid.babygirl...   I am hoping to change the ones who don't know to the ones who should know.
reply to Lo-Lo
Lo-Lo
 in response to ingrid.babygirl...   Just to let you know that you are not alone.  It helps to have others to talk about it and complain about it.  The ones who don't know don't really care to know.
reply to Lo-Lo
ingrid.babygirl
i certainly suffer with fibro... i get the fibro fog which i think is what is going on right now... so i can relate to these issues...
reply to ingrid.babygirl
Starshine
 in response to Lo-Lo...   

welcome no plans but now doing bills . God Bless and thank you I have no plans unless someone pics me up to take me anywhere stuck here..

reply to Starshine
Lo-Lo
 in response to Starshine...   Thanks.  I have no plans for this weekend.  What about you.  You take care and God Bless.
reply to Lo-Lo
Starshine

I have chronic pain too and it is in my leg and back but really from paying bills...which is what I am doing now.

reply to Starshine
Lo-Lo
 in response to Starshine...   I have to do that on the third.
reply to Lo-Lo
Starshine
 in response to Lo-Lo...   Yes it is a great feeling to know others care about you and I do miss you. Good I hope the reading is well. I have to figure out bills before the mail person...lovely..you are in my heart thoughts and prayers to..
reply to Starshine
Starshine
 in response to Lo-Lo...   

You are welcome and I think it was about net zero right??  I hope it is available there and peoplesomthing when I find it has it and aol might have it but i don't care for aol

I am ok just need more work..

reply to Starshine
Starshine
 in response to Lo-Lo...   

That is wonderful!!! You have been walking each day and getting better you go girl. Things are the same here bills to pay and not enough coming in so off to get some food I am getting good at not eating in  way..Same old thing here...great hearing from you and love to able to do a 9-5 job..love you and keep you in prayers  Have a great week love and prayers to you

reply to Starshine
Lo-Lo
 in response to Starshine...   

Guess what?  I have actually been walking lately and getting better with it each day where i don't have to stop to catch my breath anymore.  Pray that i'm able to keep it up and get some pounds off.  I know that will make me feel better.  It has already been helping with my sleep.

Besides that-- things are the same.  I know they will eventually get better.  Just keep praying for me because prayer is powerful..  I also keep you in my prayers as well.

reply to Lo-Lo
Lo-Lo
 in response to Starshine...   It feels good to know that someone misses me and cares.  What a good feeling.  I miss you as well.  I hope all is going well for you too.  You all are always in my heart, thoughts and prayers.  I got some good reading for you today.
reply to Lo-Lo
Lo-Lo

 in response to Starshine...   Thanks for the information.  I will definitely do that as soon as i am able to get a telephone as well.  I know i will need  that to get the service.  Great resource.

 

How have you been lately?

reply to Lo-Lo
Starshine
 in response to honeysuckle1...   That is ok. That is all I needed. Thank you and I hope it turns out ok too.
reply to Starshine
honeysuckle1
 in response to Starshine...   I don't know how to do that link stuff. However I think you could google NYS tax enforcement on Sept 1. Every one is antsy-hope all turns out OK.
reply to honeysuckle1
Starshine
 in response to honeysuckle1...   

You are welcome for the sites and I hope you get some help from some of them..Do take care

Let me see about something. Check back here later. I have a headache and need to eat woke up with one...

CLICK HERE 

it is a clothing bank - call them and maybe someone you know or they know can get some clothes out to your son.

good luck 

reply to Starshine
Starshine
 in response to honeysuckle1...   

Oh sweetie this is horrible. Do you have a link to a news article about it?? And your govenor says it will get bad and nothing can be done..What a bunch of nuts..This is terrible. I will keep you in my prayers and your family . I hope all goes well on the 1st and peace prevails.  I never get to relax either, I haven't seen a movie in years at the show or rent one either. I love a day to just kick back but glad you aren't hurting today so that is great!!

reply to Starshine
honeysuckle1
 in response to Starshine...   I dont get to answer my friends as much as I like. First thing in the mornings I have my 2 year old grand daughter. It's been harder because of no water heater. It takes every penny I have to get by. Jesse will have expenses for school. Clothes cost a lot and he has to have a texas instument that cost 150.00. Then there will be pics on top of the usual of getting him to doctors.I now have to borrow a car. I might check into those sites to see if theres help. Thanks caring.
reply to honeysuckle1
honeysuckle1
 in response to Starshine...   Hey-I still have it so far. I am hoping I can keep it. Say a prayer for this reservation I live on. The state of NY is supposed to come on the 1st of Sept and try to collect taxes. There are liable to be much violence. I fear for the safety of my family and all the people. The govenor said himself this is like to get violent and cause injury and death. The Indians lost in court on this issue for the first time. Looks like its going to happen. All I can do is trust God has every thing in his hands. I never get to relax-always something. At least today I dont hurt.
reply to honeysuckle1
Starshine

CHECK OUT NETZERO AND SEE IF THEY OR JUNO GOOGLE OTHERS GIVE OUT FREE 10 HOURS A MONTH STILL FOR THE INTERNET

GOOD LUCK 

reply to Starshine